To mark Clinical Trials Day (20 May), we’re excited to be teaming up with US-based non-profit Emily’s Entourage on this episode of CForYourself.Started by Emily Kramer-Golinkoff in her parent’s living room, Emily’s Entourage (EE) aims to speed-up lifesaving research and drug development for people with cystic fibrosis (CF) who do not benefit from current modulators.“At Emily’s Entourage, we believe that every single person with CF deserves a lifesaving breakthrough, no matter how rare their mutation,” says Emily.Our host Lucy enjoys a (virtual) tea and catch-up with Emily, who chats all about her CF journey, the inspiration behind EE, and her hopes for the future. Also joining Lucy is Dr Maya Desai, a trustee at Cystic Fibrosis Trust and a consultant respiratory paediatrician, who has worked with children with CF since the early 1990s. Maya has been involved with the Trust’s Clinical Trials Accelerator Platform since its launch in 2017. She is particularly passionate about increasing diversity in clinical trials and ensuring everyone with CF has the opportunity to access life-changing new treatments. A big thank you to Emily and Maya for this insightful and powerful chat. For more information and support on any of the issues we've talked about in this podcast, you can call our Helpline on 0300 373 1000, or email [email protected], or message us on WhatsApp.CF Forum - Join the conversation on our Forum and connect with other people with CF.CF Clinical Trial Connect - Find out more about a global patient database designed exclusively for those unable to benefit from modulators, with the aim to make it easier to connect people with relevant clinical trial opportunities.Trials Tracker - Search CF clinical trials currently recruiting in the UK. Our research goals - Read more about our research goals and the CF research we are funding. Join our Involvement Group to share your lived experience and insights to influence the work of the Trust and future research.

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“What did the council decide on item 42?” — answered with the speaker and the moment.

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