[Quick Tip] Saying Goodbye to Functioning Labels & What To Say Instead

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The NeuroAffirm Podcast 6 min 1 speaker 7 chapters transcribed 5 hours ago
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Why should we stop using labels like “low‑functioning” or “high‑functioning” for autistic children?

Sensory SLP 0:00
A great way to be more neurodiversity affirming is being very conscious of the language you are using. And that means getting rid of language we are used to, like saying a child is low functioning, high functioning, they have severe autism, they have mild autism. And today we are talking about why we should ditch those terms and something that I learned that was so powerful for me, and I hope this will change your perception too.
Unknown 0:32
What's up everyone and welcome to Making the Shift for Autistic Kids.
Sensory SLP 0:36
We're an SLP couple from California with four boys. And we're here every
Unknown 0:40
week to bring you neuroaffirming tips, tricks, and tools. Are you ready to make the shift? Let's do this!
Sensory SLP 0:53
Okay, so we've talked before about why we're why we're trying to move away from, you know, mild, severe, high functioning, low functioning. Autism is not a linear scale that goes from mild to severe. Autism is so much different than that. And there are so many areas of need that a person might have.

How does labeling autism as a linear scale (mild‑to‑severe) limit our understanding of strengths and needs?

Sensory SLP 1:13
And there are so many strengths a person might have. And it's very impossible almost to just to just put someone into a box saying, you are this. We also know that it can be very hurtful. For a person, both mentally and in terms of you know their future treatment plan and what we are doing for them. When we use terms like that, for example When we say a child is severely autistic, we are basically saying this child can't do anything. This child struggles with everything. This child doesn't learn, doesn't speak, doesn't think. um, can't do anything for themselves. And we are just making these really broad assumptions about a child when in reality we know that there are lots of non-speaking, which is the preferred term, non-speaking autistic people who are brilliant non-speaking autistic people who go to college and get degrees and teach and
Sensory SLP 2:11
learn and do all of these incredible things, right?

What are the hidden harms of calling a child “severely autistic” or “high‑functioning”?

Sensory SLP 2:14
So we want to be really careful about words like severe autism because it tends to Paint a picture that the child will never be capable of anything and therefore we are less likely to presume that the child's competent, we are less likely to give the child opportunities to grow and thrive because we are making these assumptions of them based off of this label. And A lot of people find it surprising that terms like high functioning autism And mild autism can be just as hurtful. The thing is with a lot of and I will say f autistic friends of mine who were diagnosed as high functioning autism, you know, back when they were younger. It's that A lot of people can't see their struggles that they face. A lot of those struggles are internal.
Sensory SLP 3:02
Those struggles sometimes might be social, might be emotional and A lot of times when we look at people and we say, Oh, they're high functioning, we're just dismissing and invalidating those struggles that they may have. Or we may be assuming that they don't have any struggles in their life and therefore we're less likely to accommodate them and help them and support them.

How can describing a child’s specific strengths and challenges replace generic functioning labels?

Sensory SLP 3:28
So using terms no matter which way you are going. is going to be harmful for a child and We say the better thing to do is describe the child. I remember I was sitting at this dinner. It was like a business networking event. And this person I was sitting with was was like, Oh, you're a speech therapist. My nephew it has autism. You know, he's high functioning though, like he Does really well in school, but he really struggles. ha with his friends and you know, he's really emotional. And I at that moment, I was like biting my tongue. I was like, This is it.

What real‑life example shows the power of using descriptive language instead of labels?

Sensory SLP 4:09
This is the moment I can choose between spreading the word. And educating, or I can just shut up. And what did I do? Obviously. I chose path A. I was like, actually we're trying to move toward, you know, avoiding those labels. And she said, Well, I don't know what else to say. And I said, Exactly how you described him is what you can say. You know, you said that he does great in school, but he needs support with his friendships and with his emotions. And that is that is going to give us a more accurate picture.

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