Rachelle Bernacki
speaker
424 appearances
3 recordings
1 series
first heard Mar 2019
last heard Dec 2021
Rachelle Bernacki’s voice in public audio — every appearance, attributed to the second.
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Appearances
We did look at goal concordant care, which was our primary outcome, and the holy grail as you noted, uh, Eric, and we d we didn't have enough patience to actually um determine the outcome for that.
So we looked for a gold standard and again we started collecting data in 2012 and there really wasn't one.
And we wanted to have a really patient centered measure.
So we developed our own uh tool called the Life Priority Scale.
And we took it to the Survey Corps at Dana Farber and they said, I'm not sure if we're gonna be able to do this and but they took it to patients, seriously ill patients, and they could answer.
could answer what was most important.
They could rank these things.
yeah, d um you know, live as long as possible, um, not be a burden, uh be comfortable, those kinds of things that are we know are really important to patients with serious illness.
And then they they could rank it on a Likert scale and they could also force choice rank.
Loved ones.
And that was actually quite hard.
And we'd one, we didn't have as many patients die as we anticipated, which is a good thing.
We had immunotherapy sort of came of age in our trial, which is good.
And um it also is quite hard to ask patient bereave family members these questions while they're
quite soon after loved their loved ones are ill.
And then we asked the family member what w what were their important goals and how much did they achieve them?
Right, right, right.
Exactly.
Exactly.
It was quite hard to to do this actually.
Showing 301–320 of 424 · page 16 of 22
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