109: 5th WSC – The Voices of Patients in Advocacy, Research, and Beyond
episode
5th World Sepsis Congress: Sepsis Research and Innovations
1h 16m
5 chapters
transcribed 26 days ago
Transcript
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Transcript generated automatically by AI and may contain errors.
What is the purpose of Session 3 and who is moderating the discussion?
Hi there and welcome back to the Fifth World Sepsis Congress. You're about to hear session 3 titled The Voices of Patients in Advocacy, Research and Beyond. A powerful and insightful panel discussion featuring sepsis survivors from all over the world. Guiding us through the discussion is our moderator, Tom Heyman, President and CEO of the Sepsis Alliance. Without further ado, over to Tom to get us started.
Thank you for joining us today. I want to thank Global Sepsis Alliance and our sponsors for making this event possible and make it possible for free. Uh, we have a terrific session today titled The Voices of Patients in Advocacy Research and Beyond. And I think, you know, we've been hearing a lot so far in this conference and generally about, you know, the big numbers around sepsis, you know, 50 million, 11 million, 2 million in the US, uh, $350,000. dying, but you know, numbers kind of don't connect with people in the way that people's stories do. And, you know, sepsis is really about real people and families being impacted. And it's these real people who can drive change in awareness, in uh Delivering a more robust government response and in supporting research and innovation.
So I'm really happy that we have this session today to remind us all about the power of patients, whether it's in advocacy research or other things. My name is Tom Heyman. I'm the president and CEO of Sepsis Alliance. We are a patient advocacy organization based in the US, uh, started after the death of a young child. In 2002, which started our organization. And we work in four areas. One is public education, making sure the public knows sepsis is a medical emergency like stroke or heart attack. We also provide a support community for survivors and family members called Sepsis Alliance Connect. We also train healthcare professionals. We've trained over 60,000 healthcare professionals to be better equipped and better aware of
Uh, to look for sepsis and be able to diagnose and treat it more effectively. And then we also work in policy and advocacy, leveraging your voices and the voices of others to make sure that we're being heard in state and federal government about how large a problem this is for the government, for the nation in terms of expense and lives saved and torn apart. And then also innovation: what can we do as a patient advocacy organization to help in? Industry bring better innovations to market and to the bedside from brain to bedside. One of the things we're most proud of was that in 2010, Sepsis Alliance joined with two other three other organizations to form the Global Sepsis Alliance, realizing that sepsis was not a national issue, it's a global issue and does not obey borders.
So really, really proud of the work that Global Sepsis Alliance has done and continues to do. and and supporting kind of a drive to make sure that sepsis is note noted and understood and addressed on a global scale. So I'm going to introduce our panel one at a time. And we have a fantastic panel today. And I'm going to provide brief introductions and then allow them to give more of an introduction. And I encourage all of you to look at their full bios and check out the work that they're doing in greater detail, which is all on the website. I'm going to start with James, James Hospedales. Forgive my pronunciation. James is a citizen of Trinidad and Tobago with 30 years' experience in public health in the Caribbean, Latin America, UK, and USA.
In 2020, he founded Earth Medic and Earth Nurse Foundation for Planetary Health to mobilize health professionals to address the climate crisis, critically important. He has contributed over a hundred papers and reports and a regular contributor to contributor to the G7 and the G twenty. He's an honors graduate in medicine from UWI, graduate of London School of Hygiene and Tropical Medicine. And with that, I'm going to turn it over to James.
Thank you very much, Tom. Uh good morning, good afternoon, uh wherever folks are. Uh thanks for asking me to speak at this conference.
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Chapters
5 chapters
1
What is the purpose of Session 3 and who is moderating the discussion?
0:01–7:29
2
How does Tom Heyman introduce the Sepsis Alliance and its four focus areas?
7:29–18:48
3
What personal sepsis experience does James Hospedales share and what lessons does he draw for advocacy?
18:48–51:01
4
How does Elena Moya describe her journey from meningitis survivor to global advocacy?
51:01–1:07:56
5
What challenges and recovery story does Priscilla Hmar (Priskil) recount from her sepsis episode?
1:07:56–1:16:26
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